Sunday 2 June 2019


Every day, I learn something new from another caregiver. 

Today, I was reading a conversation in a support group for spousal caregivers. "How can I cope with the resentment and frustration that comes from being so tired all the time?" someone asked. Another caregiver replied: "We wear different hats as wives. And remembering that can make a big difference.  "What hat am I wearing right now...? is a tool I use to check in with myself. It helps with my perspective, it helps with my energy levels, it helps with my stress levels."

The wisdom of caregivers, shared to ease the paths of others. I am inspired every single day. 


Carrie D said...

I am a caregiver of a double lung transplant patient. I manage over 40 million dollars in business as Director of Sales for my company. Managing my husbands journey has completely overwhelmed me. The system-our health care system and transplant program is so flawed.

The Caregivers' Living Room said...

Ohhhh I am so sorry that it is so hard. I cannot begin to imagine managing your job in addition to complex care for your husband. I think we do complex care (including transplant and multiple chronic diagnoses) very poorly. Patients suffer, but so do families because so much of the care is at home. Our system is broken.