tag:blogger.com,1999:blog-1489173439865061632.post2887044254215988964..comments2024-03-21T07:04:24.033-04:00Comments on THE CAREGIVERS' LIVING ROOM A Blog by Donna Thomson: Awakenings: The Push-Pull of Letting GoAnonymoushttp://www.blogger.com/profile/11368028391616959419noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1489173439865061632.post-84942381307483313192013-02-24T18:29:49.716-05:002013-02-24T18:29:49.716-05:00I will never forget when I was going to go to my d...I will never forget when I was going to go to my daughter's home one day and she clearly stated to me that she had plans so we would have to make it another day...this was truely a welcomed awakening to me:) <br />I am very saddened for the people who can not reach this point due to multiple barriers and yes then what happens are the crisis situations. <br />It is very concerning for me to witness crisis situations when they could have been avoided. When families have the full total care for an individual they do not have the strength to advocate to get to the point of being able to "partially pull aside"...there needs to be more one on one support for families. <br />Donna I read your blog all the time and am very inspired by your writings - I also pass on the many messages you write in hopes of giving people strength to go forward and for them to also realize they are not alone.<br />Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-21503949374783268122013-02-21T09:14:48.707-05:002013-02-21T09:14:48.707-05:00Louise, I know you will get there and that Ben wil...Louise, I know you will get there and that Ben will too! Please keep telling everyone about your journey because you inspire me in understanding greater meaning in my family life.The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-2918193588522864362013-02-21T09:10:45.287-05:002013-02-21T09:10:45.287-05:00Thank you, Jonathan, of course you are right! I a...Thank you, Jonathan, of course you are right! I am talking about being completely joined at the hip vs halfway joined at the hip! Our relationship is so very very close (and that's typical of Moms like me and their kids). But that has to ease up a bit when Mums get old and I need to give Nick's caregivers a little trust and space too. When Nick started saying "Mum, go away!" when he was having fun in his room with caregivers, I got the message, but it hurt a bit. I am slowly getting used to the fact that my husband and I are not the only people in Nick's life. sigh.The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-33082653350819249712013-02-21T05:37:04.015-05:002013-02-21T05:37:04.015-05:00Really liked this Donna, but remember kids always ...Really liked this Donna, but remember kids always need their Mum. Moving on is a part of life but you will always be the net that catches them if they stumble as they gain freedom. I also wanted to say you really are a remarkable woman, wife, mother and all the other hats you wear. Big respect to you Donna and love to your family.<br />Yours<br />Jonathan WAnonymoushttps://www.blogger.com/profile/11857009887760972916noreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-71954900520056849912013-02-20T21:05:45.723-05:002013-02-20T21:05:45.723-05:00my goal will be to be where you are one day, where...my goal will be to be where you are one day, where my son can lead a rich, supported life in his own home and is happy. i can only imagine how the push and pull plays with the heart as your role changes, but i hope you are so proud of what Nick and you and your family have accomplished. xoBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-37739590173046827412013-02-20T16:52:37.225-05:002013-02-20T16:52:37.225-05:00I could not agree with everything you have said. ...I could not agree with everything you have said. Thank you so much for sharing your perspective. Our family is very, very lucky as well to have good care arrangements for our son. Many do not and have no choice but to continue giving total care until a crisis occurs. I believe it is vital to keep a public discussion going about what constitutes fairness in caregiving, ageing and what constitutes a good life for anyone who gives or receives care.The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-32019011062638676592013-02-20T14:52:59.725-05:002013-02-20T14:52:59.725-05:00Beautiful, thought-provoking and very moving....Beautiful, thought-provoking and very moving....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1489173439865061632.post-24258724046441369782013-02-20T12:19:40.901-05:002013-02-20T12:19:40.901-05:00This movie also connected with me and I agree with...This movie also connected with me and I agree with your sentiments and narrative of the movie - but in the real life of of those who require extensive care many can not afford the assurance of "individualised quality care" in an instituational setting, meaning its institutional living without choice or equal access to supports and services. <br />In our situation I soul searched the future for my daughter to live in an inclusive community in her own home with her own personal assistance to ensure she has control and dignity in her own life...in spite of her challenges. I was able to collaborate the services and supports to enable her to live in her own home. In our situation we were VERY FORTUNATE to have a team who worked in various government agencies to see our long term vision,which also is cost effective versus INSTITUTIONAL settings, and enabled me as her mother to reliquish some of the many hats I wear.<br /> The sad part is that when families become/are "Clients of the System" the government controls how, where and when; which then does not offer any of the above components to enable persons with diversibilites with higher needs of support to achieve basic human rights. <br />When the government controls we as parents are not guaranteed quality care which then does not promote "letting go." <br />What happens to these families - they will never be able to let go!Anonymousnoreply@blogger.com